The same day Celine Dion’s People magazine hit the stands! These energetic connections don’t go by me unnoticed. There is always a connection and a reason things are happening. We’re learning to trust the process but that is a daily shift.
730 days ago, 16 monthly infusions later, that will continue perpetually. Lots and lots of specialists, testing and Dr visits.
Xander has 3 autoimmune diseases and they are now testing for celiac. He also has scoliosis and severe hip dysplasia from the ramifications of SPS (Stiff Person Syndrome) on top of many other complications.
We share monthly so that we can spread awareness and try to find other families to connect with for information who may have children under 18 trying to find a way like we did 3 years ago.
The few Specialists in this nation will only see adults and a few that will entertain having us, are now completely overwhelmed with new patients on a daily basis so who knows when we’ll get to see someone who actually knows more about this disease than your regular doctor.
Thanks as always for your support, your shares, or your donations as this disease won’t quit and neither will we.
SPS warriors since 2024!
A Better Life for Xander!
https://gofund.me/9eadcd630
